Asperger's Syndrome is a milder variant of
Autistic Disorder. Both Asperger's Disorder and Autistic Disorder are in fact
subgroups of a larger diagnostic category called either Autistic Spectrum
Disorders (ASD) or Pervasive Developmental Disorders (PDD). It manifests in
highly individual ways and can have both positive and negative effects on a
person. It is typically characterized by issues with social and communication
skills
Individuals affected by Asperger's Disorder,
are characterized by social isolation and odd behavior in childhood. There are
impairments in two-sided social interaction and non-verbal communication.
Though grammatical, their speech is peculiar due to abnormalities of inflection
and a repetitive pattern. Clumsiness is prominent both in their articulation
and gross motor behavior. They usually have a circumscribed area of interest
which usually leaves no space for more age appropriate, common interests. Some
examples are cars, trains, history, scientific facts, door knobs, hinges,
meteorology, astronomy or even murder mysteries.
The actual diagnosis (labeling) should be the
final step in the evaluation. The assignment of a label should be done in a
thoughtful way, so as to minimize stigmatization and avoid unwarranted
assumptions. Every child is different and therefore, it is absolutely crucial
that intervention programs derived from comprehensive evaluations are
individualized to insure that they address the unique profile of needs and
strengths exhibited by the given child. The psychiatric label should never be
assumed to convey a precise preconceived set of behaviors and needs. Its main
function is to convey an overall sense of the pattern of difficulties present.
Professionals should never start a discussion of the child's needs by evoking
the label. Rather, they should provide a detailed description of evaluation
findings that resulted in the diagnosis of Asperger's Syndrome. A discussion of
any inconsistency with the diagnosis, as well as of the clinician's level of
confidence in assigning that diagnosis, should also be provided.
A thorough assessment of the child's assets and
deficits in the context of an interdisciplinary evaluation includes assessments
of behavioral (or psychiatric) history and current status, neuropsychological
functioning, communication patterns (particularly the use of language for the
purpose of social interaction, or pragmatics), and adaptive functioning (the
individual's ability to translate potential into competence in meeting the
demands of everyday life).
Psychiatrists:
Assessment includes observations of the child during more and less structured periods: for example, while interacting with parents and while engaged in assessment by other members of the evaluation team. Specific areas for observation and inquiry include the patient's patterns of special interest and leisure time, social and affective presentation, quality of attachment to family members, development of peer relationships and friendships, capacities for self-awareness, perspective-taking and level of insight into social and behavioral problems, typical reactions in novel situations, and ability to intuit other person's feelings and infer other person's intentions and beliefs. Problem behaviors that are likely to interfere with remedial programming should be noted (e.g., marked aggression). Other areas of observation involve the presence of obsessions or compulsions, depression, anxiety and panic attacks, and coherence of thought.
Clinical Psychologists:
Assessment includes establishing the overall level of intellectual functioning, profiles of strengths and weaknesses, and style of learning. The specific areas examined and measured include neuropsychological functioning (e.g., motor and psychomotor skills, memory, executive functions, problem-solving, concept formation, visual-perceptual skills), adaptive functioning (degree of self-sufficiency in real-life situations), academic achievement (performance in school-like subjects), and personality assessment (e.g., common preoccupations, compensatory strategies of adaptation, mood presentation).
Speech-Language Pathologists:
Assessment aims to obtain both quantitative and qualitative information regarding the various aspects of the child's communication skills. It goes beyond testing the formal speech and language development (e.g., articulation, vocabulary, sentence construction and comprehension), which are often areas of strength. The assessment should examine nonverbal forms of communication (e.g., gaze, gestures), non-literal language (e.g., metaphor, irony, absurdities, and humor), prosody of speech (melody, volume, stress and pitch), pragmatics (e.g., turn-taking, sensitivity to cues provided by the interlocutor, adherence to typical rules of conversation), and content, coherence, and contingency of conversation; these areas are typically one of the major difficulties for individuals with AS. Particular attention should be given to perseveration on restricted topics and social reciprocity.
A quick guide that helps differentiate between Asperger's and
High Functioning Autism-
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onset is usually later
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outcome is usually more positive
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social and communication deficits are less severe
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circumscribed interests are more prominent
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verbal IQ is usually higher than performance IQ (in autism, the case is usually
the reverse)
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clumsiness is more frequently seen
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family history is more frequently positive
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neurological disorders are less common
DIAGNOSTIC CRITERIA FOR ASPERGER'S DISORDER
DSM-IV (the most recent Diagnostic and Statistical Manual of the
American Psychiatric Association, 1994) provides the following guidelines for
definging Asperger's Syndrome
A. Qualitative impairment in social interaction, as
manifested by at least two of the following:
(1)Marked impairment in the use of multiple nonverbal behaviors such as
eye-to-eye gaze, facial expression, body postures, and
gestures to regulate social interaction
(2)Failure to develop peer relationships appropriate to developmental level
(3)A lack of spontaneous seeking to share enjoyment, interests, or achievements
with other people (e.g., by a lack of showing,
bringing, or pointing out objects of interest to other
people)
(4)Lack of social or emotional reciprocity
B. Restricted repetitive and stereotyped patterns of
behavior, interests, and activities, as manifested by at least one of the
following:
(1)Encompassing preoccupation with one or more stereotyped and restricted
patterns of interest that is abnormal either in
intensity or focus
(2)Apparently inflexible adherence to specific, nonfunctional routines or
rituals
(3)Stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping
or twisting, or complex whole-body movements)
(4)Persistent preoccupation with parts of objects
C. The disturbance causes clinically significant impairment
in social, occupational, or other important areas of functioning.
D. There is no clinically significant general delay in
language (e.g., single words used by age 2 years, communicative phrases used by
age 3 years).
E. There is no clinically significant delay in cognitive
development or in the development of age-appropriate self-help skills, adaptive
behavior (other than in social interaction), and curiosity about the
environment in childhood.
F. Criteria are not met for another specific Pervasive
Developmental Disorder or Schizophrenia.
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Intervention
programmes
As in autism, intervention of Asperger's Syndrome is
essentially supportive and symptomatic. Special educational services are
sometimes helpful but there is no evidence on the effectiveness of specific
interventions. Acquisition of basic skills in social interaction as well as in
other areas of adaptive functioning should be encouraged. Supportive
psychotherapy focused on problems of empathy, social difficulties, and
depressive symptoms may be helpful, although it is usually very difficult for
individuals with Asperger's Syndrome to engage in more intensive,
insight-oriented psychotherapy.
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Early Intervention
It has been observed that in the past, many individuals with
Asperger's Syndrome are initially diagnosed as learning disabled with eccentric
features, a non-psychiatric diagnostic label which alters the course of
intervention programmes that maybe provided to these children. Many
professionals and teachers are usually unaware of the extent and significance
of the disabilities in Asperger's Syndrome. Proficient verbal skills, overall
IQ usually within the normal range, and a solitary lifestyle often mask
outstanding deficiencies observed primarily in novel or otherwise socially
demanding situations, thus decreasing the perception of the very salient needs
for supportive intervention. Thus, most often the actual problems faced by many
of these children are left unidentified which in turn leads to increased social
and emotional issues in adolescents and adulthood. It is very crucial to
identify individuals with Asperger's Syndrome early to be able to provide them
with unique and optimal services that will highlight their strengths and
enhance social-emotional adjustments in later life.
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Inter-disciplinary
approach
Any child should be provided services in an inter-disciplinary
setting which has a team comprising people with varied expertise. A key feature
of "interdisciplinary model" is where members discuss among themselves and the
family and work towards the overall development of the child.
Professionals involved in planning an effective intervention
programme includes
Psychiatrists
Speech and Language pathologists
Occupational therapists
Special Educators
Psychologists
Counselors
The above mentioned professionals work on one or more of the
following areas -
Learning
Educational guidelines should be derived from the individual's
neuropsychological profile of assets and deficits; specific intervention
techniques should be similar to those usually employed for many subtypes of
learning disabilities. Skills, concepts, cognitive strategies, and so on, may
be more effectively taught in an explicit and rote fashion using a
parts-to-whole verbal instruction approach, where the verbal steps are in the
correct sequence for the behavior to be effective.
Motor Skills
If significant motor and visual-motor deficits are corroborated
during the evaluation, the individual should receive physical and occupational
therapy. Therapists should not only focus on traditional techniques designed to
remediate motor deficits, but should also reflect an effort to integrate these
activities with learning of visual-spatial concepts, visual-spatial
orientation, and body awareness.
Adaptive Functioning
Individuals with Asperger's Syndrome tend to rely on rigid
rules and routines. This can be used as an advantage to foster positive habits
and enhance the person's quality of life and that of family members. The
teaching approach should be practiced routinely in naturally occurring
situations and across different settings in order to maximize generalization of
acquired skills.
Maladaptive Behaviours
Specific problem-solving strategies, usually following a verbal rule, should be taught for handling the requirements of frequently occurring, troublesome situations (e.g., involving novelty, intense social demands, or frustration). Children need to be trained to recognize situations as troublesome and equipped with coping strategies
Social and Communication Skills
It is very essential that these skills are taught by a
communication specialist with a special interest in the pragmatics in speech.
Social training groups are very effective for the practicing specific social
skills. The programme may include working on recognizing and practicing
appropriate nonverbal behavior (e.g., the use of gaze for social interaction,
monitoring and patterning of inflection of voice) and enhancing social
awareness, perspective-taking skills, and correct interpretation of ambiguous
communications (e.g., non-literal language). Generalization of learned
strategies and social concepts should be instructed, from the therapeutic
setting to everyday life e.g. to examine some aspects of a person's physical
characteristics as well as to retain full names in order to enhance knowledge
of that person and facilitate interaction in the future.
The programmes described above may not cure but will help those
diagnosed with Asperger's Syndrome better function in society.
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Tips for parents
The following should be seen as suggestions to be considered
when discussing optimal approaches to be adopted while working with your child.
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Social awareness should be cultivated, by providing opportunities and interact
with people and focusing on the relevant aspects of given situations, and
pointing out the irrelevancies contained therein.
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To enhance the individual's ability to compensate for typical difficulties
processing visual sequences, particularly when these involve social themes, by
making use of equally typical verbal strengths.
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Self-evaluation should be encouraged. Learning to analyze one's own behaviour
and talk about it in a positive manner is very essential. Self-evaluation
should also be used to strengthen self-esteem and maximize situations in which
success can be achieved.
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Awareness should be gained into which situations are easily managed and which
are potentially troublesome.
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Rule sequences for e.g., shopping, using transportation, etc., should be taught
verbally and repeatedly rehearsed.
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Verbal instructions, rote planning and consistency are essential.
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The individual should be instructed on how to identify a novel situation and to
resort to a pre-planned, well rehearsed list of steps to be taken. This list
should involve a description of the situation, retrieval of relevant knowledge
and step-by-step decision making.
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The link between specific frustrating or anxiety-provoking experiences and
negative feelings should be taught to the child in a concrete, cause-effect
fashion, so that he/she is able to gradually gain some measure of insight into
his/her feelings. Also, the awareness of the impact of his/her actions on other
people's feelings should be fostered in the same fashion.
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FAQs
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